LaPorte couple’s FA Woodstock unites people living with rare neuromuscular disorder

WNLP photos by Bob Wellinski (click to enlarge)

The Flying H Ranch in rural LaPorte County, owned by Tom and Paula Hook, hosted its 8th annual FA Woodstock July 20-22. FA stands for Friedreich Ataxia, a debilitating, life-shortening, degenerative neuromuscular disorder. Onset of symptoms can vary from childhood to adulthood. About 1 in 50,000 people in the United States have the disease.

The Hook family has embraced the battle against FA as two of Tom and Paula’s three daughters live with the disorder. The Hooks have chosen to bring awareness to FA, and to support those who live with it, in a unique way: Each year for the past 8 years, they have hosted an annual summer gathering: FA Woodstock. As described on the Hooks’ website: “It is three days of camping, swimming, music, yoga, tie dye, and much more. Those who aren’t up for sleeping in tents stay in local area hotels and drive in daily. The first Woodstock started in 2010 and entertained a total of 30 people. Word spread throughout the FA community of good times and friendship to be had at the ranch,” and now the annual event hosts more than 100 people.

For more information about the Flying H Ranch and its commitment to FA, visit www.hooksflyinghranch.com and the Flying H Ranch page on Facebook.

3 Responses to “LaPorte couple’s FA Woodstock unites people living with rare neuromuscular disorder”

  1. Carli

    Jul 22. 2017

    Thanks for the great write up! It was an amazing time AGAIN! Can’t wait for next year!!!

    Reply to this comment
  2. Keven Putnam a.k.a. mr.pottawattamie park

    Jul 22. 2017

    Very inspiring great job.

    Reply to this comment
  3. Johanna

    Jul 22. 2017

    Paula and Tom and their girls embrace their FA family in the most amazing bear hug! They inspire all of us to do good in the world.

    Reply to this comment

Leave a Reply